Monday, November 14, 2011

First Chapter Finished

Well I did it, I finished sharing the beginning of my personal journey with Down syndrome. I suppose if it were a book, this would have been the first chapter (although it would have been quite long!). The story, obviously, does not end here since Nichole is 4 years old.

This is something I would like you to know. Nichole is a light in my life! She is the daughter I always wanted, I just never knew it. I would not change her, Down syndrome and all, for anything in the world. Yes, she is exactly who God created her to be. She has been my teacher of life, she has been my joy, she has been the source of endless love. I really want you to know that.

I wrote 24 posts sharing what it was like to deal with the diagnosis of Down syndrome. Hopefully, I was able to communicate with you how God met me in a dark place of brokeness, and how He used Nichole to change my heart.

If you did not get a chance to read, you can start by reading my first post or "Prologue": Road Marker 321.

At the end of each post, you should see a link to the next entry.

If you did get a chance to read. What did you think about it?
If you have a child with Down syndrome, were you able to identify?
If you do not have children with special needs, was this helpful to you?
Were you ever in a situation where you had to chose love?
Have you ever been in a hole where God pulls you out and holds you in His arms?
Have you experienced flashes of color in your life that you never knew before?

I would love to hear from you. I got to share my heart with you, and it would be an honor to hear your heart too.


  1. Anonymous2:39 PM

    This was such a powerful and honest statement. I don't have kids and don't know if I ever will, but you have given me a new perspective on facing the unexpected in life. Thank you.

  2. Not only did I read it all, but I checked every day to see if you'd written more! It was so beautifully written. Honest and beautiful! I didn't really grieve with Reagan, but I still totally identified with it all.

  3. THANK YOU for sharing your heart - and your journey - with us, Ellen! I was captivated by each and every post. You have a wonderful way with words; your feelings were palpable even through my computer screen. I don't have kids nor one with special needs, but through your posts I have learned that these children are extraordinary and come with lots of love - and I want one. I really do. Might sound crazy, as that nurse told you, but I don't care. I really want to experience that love for myself someday.

  4. I was able to read all ur post, and it was a pleasure. you are so sincere and strong woman, ur kids are so lucky to have you.
    I have a dear friend who's son was diagnosed with autism, and with ur writing's I had learned so much to apply. Special children like Nicole and my friend's son are indeed a blessing from God, we are chosen to give love, care and affections to these God's gift.
    I salute you.

  5. Anonymous3:06 PM

    I really enjoyed hearing all of the posts. Its a nice perspective that I wouldn't normally get. I would love to follow another series like this on CP or adoption or anything else. Mrs Y.

  6. Ellen, I sat and read your entire blog in a week. Crying, smiling, and Praise God. You are remarkable, and an inspiration. Rhonda Kubehl

  7. Julie7:13 AM

    very blessed by reading your story Ellen. I love how God has moved you to this place. Definitely a journey! We miss you guys!

  8. I stopped by your blog this evening and chose Road Marker 321. Much later, it's now almost 1am, and many posts later I've just finished the entire series of posts! If I attempted to write one word on how it touched me I feel I would have to write thousands. I'm in awe and worshiping.


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