Saturday, July 31, 2010
Thursday, July 29, 2010
My sweet baby girl has chickenpox and it is so sad. Andy and I look at her and we feel like crying for her. They say that children with Down syndrome have lower immune systems. in this case, I hope this is not true. Ellie is already on the mend and Nichole started getting spots two days after Ellie got hers. We are hoping that Nichole's worst day was today, and that tomorrow there are no more new spots!
Wednesday, July 28, 2010
Almost three years ago, my world was shaken by the birth of my second daughter, Nichole. I knew from the moment I laid eyes on her that she had Down syndrome.
Fear. Tears. Questioning. I wondered if I would ever be able to breathe again, to live life. I felt like I had birthed a broken baby.
At a bookstore I found a book called “Gift: Mother’s Reflect on How Children With Down Syndrome Enrich Their Lives.” The beautiful picture of a baby with Down syndrome was inviting, so I dared open it. I quickly glanced at the foreword and read the first sentence, “Your life will have flashes of color you never knew possible.” I knelt down in the middle of the isle, tears streamed down my face as I held the book tight and close to my heart. All of a sudden, I was flooded with hope. I knew that in those pages I would find truth; the truth about having a baby with Down syndrome. The truth that I wish everyone would know, weather their child has this condition or not.
Because of Nichole, we have embarked in the most life altering journey of our lives. A journey that I would not have willingly chosen, but now that I live it, I would not trade it for anything in the world.
She has taught us more in her lifetime that we have learned from anyone else. She has showed us what love, joy, peace, kindness, and gentleness looks like. To find beauty in places that the world might label as less than perfect. And she opened our eyes to the world of special needs.
Because or Nichole, we adopted a little girl with Cerebral Palsy. When I see them playing together, I am reminded that it was because of Nichole that a once-orphan girl was saved. It was because of Nichole, that our adopted daughter now has a hope and a future.
October is National Down Syndrome Awareness month. Please consider honoring the wonderful individuals with Down syndrome that continue to teach us the mysteries of life that really matter.
And if you want to send your own submission to contribute to this cause, just click here.
Tuesday, July 27, 2010
Saturday, July 17, 2010
Nichole is a runner. If there is open space before her, she will take off. I don't think she has any place in mind to go to, she just likes to go. We have even tried those cute little backpacks with a leash but she gets so mad about wearing them that it is better to just hold her.
The problem with holding Nichole (holding her in our arms or holding her hand) is that she has a superpower. Her super ability is what I call "noodling." It is best described by saying that all of her limbs can and will be transformed into a wet noodle and she escapes anyone's grasp!
Once Nichole noodles herself, she is gone, she takes off! Lately, she will try to the best of her ability to find "outside" and take off, and she will use "noodling" if she has to.
We are currently in Montana visiting Andy's family. Just a few days ago my mother and I were in the basement and she was helping me spray the girl's bed (night time accident.) We were in the room...I don't know, maybe 3 minutes? Nichole was dancing and singing to barbie princess and he Pauper but I realized I could not hear her anymore. I went to the family room and she was not there. I ran up the stairs hoping to find her in the living room or doing play-doh with her sisters...not there.
"Have you seen Nichole?" I asked Ellie while looking outside the window.
Right OUTSIDE Nichole was climbing down the curb and taking off running down the street! I am not a runner, but oh boy did I run fast! Yelling, "NOOOOOO!!! NICHOLE STOP!!!!!"
She saw me, but it did not face her. Oh did she get in trouble! She cried when she realized how scared I was, and I was scared, what if I had not checked on her? what if she had not been in view as I looked outside the window?
My little escape artist, one more nickname to add to the many she has had...