Tuesday, November 22, 2011

Cerebral Palsy Connection

Do you see this image on the sidebar?

Let me tell you what this is all about. 

When Nichole was born, I quickly discovered that the Down syndrome community is very connected. This "new family" came along with Nichole's extra chromosome. Any question I had, any frustration, any joy, anything at all regarding Down syndrome, there was a group of people around that I could go to, learn from, and lean on.

When Nina came along, I tried to find the same support and connection in regards to Cerebral Palsy, but it was not the same. I called all Cerebral Palsy moms right here on this blog, because sometimes CP is just plain puzzling! Yes, I have met some wonderful people. There are great moms out there advocating for their kids, and there are some incredible adults that do their own self-advocating. I am so thankful for those connections made, but, I know there are more of us out there in this blogging world.

In light of that, I decided to host a "Cerebral Palsy Connection." I want to hear from other moms that have kids with CP. What has worked? What has been hard? What is life like? I also want to hear from young adults and adults living with CP. What can you share with us moms with younger kids? What is life like as an adult having CP? What has worked for you? What advice would you give to us moms?

What will it look like?

Every first day of every month, we will all come together and link up so we can do some blog hopping. (Yes, I am letting you know some time in advance because of Thanksgiving break and so that we can spread the word.)

On the mean time, you can grab the button on the sidebar, and share it on your blog.

Then, on December 1st, come back here and join the linky! That easy! 

And don't worry, I will remind you about it so you don't miss out.

I am so excited! So very excited to meet new friends that travel the same road we travel as we do life with Cerebral Palsy.


  1. Ellen!!! THANK YOU, THANK YOU, THANK YOU for organizing this and putting your thoughts together.
    We are in the process of adopting an 8 year old with moderate CP (from China) and I'm learning so much. I just sent her her new purple "walking sticks" and I couldn't quite explain the "Why" to people on why they "needed" to be purple. But you did sooo well in explaining the "Cuteness" and I linked your post on my blog just this week. so Thanks!
    Now I'm excited to learn even more from experienced CP parents and be in a "community"
    Lynnea :)

  2. How awesome are you!!! Love this! Can't wait...maybe this will get me blogging more regularly!

  3. SUPER excited, Ellen!! What a fabulous idea! I know that I have been blogging about CP for a while, but it's always great to meet other CP mama's!!

  4. yea\\\ happy can not wait :)


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