Monday, September 10, 2012

This girl can jump! Cerebral palsy won't stop her.

Cerebral palsy is one of Nina's greatest challenges, but although it is a challenge, cerebral palsy is also one of her biggest character builders. That was not always the case, when Nina first arrived home after we adopted her, she had a "victim" mentality. "I can't," were her first English words and oh how we pushed this little girl to take ownership of her abilities.

Last April (17 months ago) Nina had a rhizotomy. We spent the summer going to therapy every day of the week, and eventually were able to cut down to 3 times a week. Still, by the time Nina began Kindergarten, we were taking her to school in her wheelchair, she used her walker only in the classroom. Little by little, she began to gain strength and walk independently, the wheelchair became a means to get her from the car to her classroom only and back again.

We know the rhizotomy made a huge difference. This surgery gave her legs the possibility to walk by greatly reducing her spasticity (tightness). We are convinced Nina would not have been able to walk independently without some type of asistive device if it wasn't for this surgery. She was tight, tight, tight! But we are also convinced that when Nina saw what her classmates could do, and that she was being left behind, something inside of her became determined. Cerebral palsy? She was not going to let that stop her. By the end of the school year, Nina was walking independently all around school, without her walker.

Then summer came and therapy stopped (she received therapy through school) I tried to get therapy for both my girls through a local place here that supposedly works with kids in the summer. That didn't happen for unknown reasons to us, but that is a different story. Nina regressed during the summer, her confidence was not the same, her stability was not the same, her endurance was not the same.

As a mom, I felt discouraged.

Then school began on Wednesday, and I was hoping that within a month we could get back to the swing of "movement" we were at before.

Well, I guess our little determined girl decided to take it up a notch even more. She has decided she will not only work on her walking, but her jumping to. If you know anything about cerebral palsy, you know this is quite the accomplishment.

So here it is, our determined girl that won't let cerebral palsy stop her, her character builder for determination and courage. Jump sweet girl, jump! Oh, and this girl jumps with her own style, because she likes to move it!

14 comments:

  1. Do you know we haven't see her since she started walking independently?! That means it has been WAY too long since we saw each other!!! March, right? I'm praying for that! Tell her great job with the jumping! Oksana just learned to jump not too long ago. Good for you Nina!

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    1. No wonder I miss you so much! When are you guys moving here already!

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    2. Ha! That's the same question I have for you ;)!

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  2. WOW Nina! You go girl! I am so hoping that school is going to have a similar effect on Ben! Love her singing!

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    1. Cary, school has been so good! Now to work on those knees coming together ;)

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  3. awesome! we are working on jumping right now and it is so hard...but Mikisa is determined to get it:) i will show her this video when she gets home from school. (and that is one of her favorite songs too)

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    1. Christina, I just want to meet you and Mikisa some day. Really, I wish we lived close by because I think we would be great friends!

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  4. That's awesome jumping, Nina! I especially loved the little double-jump at the end of the video. Way to go, girl!

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    1. Yes! I was about to say that in the video when I turned it off! That was a dou....and it turned it off. but isn't that awesome? This girl could not even walk independently a year ago!

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  5. Nina, I have tears streaming down my cheeks. You worked so hard to get there Nina. Jumping is HARD and you DID IT! I cannot tell you how proud I am of you. Wiping more happy tears off my face now.

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    1. Leah, yes! You understand this so well. It is not only CP, it is also what her life was like before!

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  6. Way to go!!! I have a very dear friend who has a 9 year old son with CP. "Can't" isn't in his vocabulary. He is a fabulous little boy!

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  7. Thanks for this great post and video. I'm mom to a 27yo daughter who was spastic quad cp w/severe cognitive limitations. We did ITB Baclofen therapy in lieu of the rhizotomy. Not sure she would've been a candidate for the rhizotomy due to severe scoliosis. Just want to tell ya, it made my heart happy to watch the video and see Nina achieve such success. Keep working Nina, you're AMAZING! Please, please, share Nina and this great story with us @ CP Family Network. We have many families inquiring about the rhizotomy procedure and more that you would be such a wonderful resource and inspiration for!

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    1. Lee, let me know what exactly you would want and I might get something up for you :)

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