Sunday, January 29, 2012

Responding to Your Comments # 5

Blog Post: What To Say/Not To Say When your Friend's Baby Has Down Syndrome

Bottom line is that most people mean well even if their responses are somewhat awkward. They'll become more informed over the coming years as they get to know our beautiful children who happen to have a spare chromosome.
You are absolutely right. Most people are trying to show support. This is why we are all learning together.

I'm not sure if you waded through all the comments on Aaron Shust's blog.
Yes I did. Actually, that was the reasons I decided this was a timely post.  Which such a recognized christian figure, and with so many people offering support, it was clear to me who had kids with Down syndrome and who didn't! Again, people are well meaning, but some things are hard to hear.

We were offered an abortion because my numbers were borderline. (20 years ago)I guess it was the law, but I was hurt and insulted!
It is sad that not much has changed. I do wish that there was a better understanding in the medical community about what Down syndrome is like besides the medical issues.

I grew up with a girl with Down Syndrome. We went to (public) school together most of our childhood. I took swimming lessons at her parents' pool and spent a lot of time there. I knew she was different in some ways, but we grew up together and that was a gift. I learned that it was okay - normal - to include her in everyday activities and that she had a lot to contribute.
That is exactly it, they have so much to contribute!

It's always hard to say the right things in awkward situations, but it helps when we can share our experiences with others. I struggled with infertility for almost 9 years and it was hurtful to get comments from friends and even family who meant well, but just didn't know any better.
What a great story to share! Would you consider doing a guest post for "These Broken Vases" about this topic?

I think so often our desire to say something, anything, wins out over just keeping our mouth shut! When my son was diagnosed with autism the comments left me absolutely speechless and heartbroken. I'm sorry; how devastating for you; special needs kids can do so much now, yesterday I saw a child with DS working at Walmart...I would rather hear someone talk about how God made these babies with a PURPOSE!
I love that word...purpose! God does indeed have a purpose for our special children! I am so thankful for how my daughter has changed my life!

Blog Post: These Broken vases: Finding Beauty In Unexpected Places

I just changed over to a new format and got my own domain. I get it!
Tell me more about getting your own domain. How did that go with your old blog posts? With your old links?
What is the best way to respond to comments? I could go on and on with questions! Ha!
I am learning more about blogging. Slowly but surely!

Don't forget, February 1st will be our next Cerebral palsy Connection link-up! So if you blog about Cerebral palsy, don't forget to stop by on Wednesday!

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