Wednesday, March 9, 2011

Selective Dorsal Rhizotomy- Part 1

Nina got to go to Mayo on Monday and we talked extensively about her having a Rhizotomy. Here is a link that explains with great detail what it is and what it does. I will share more about this on a later post, but for now, I wanted to share with you a before and after rhizotomy video I found.

Nina is a lot tighter than the child you will see, and I mean, a lot tighter. I put on all my weight on her feet so that I can get them to flex. Stretching her is really hard. Her leg...we have never seen it straight.

The video made me cry, just thinking that Nina might be able to get some relief from her spastic muscles does something to my heart. I easily forget how much pain she lives with from her spastic muscles, yet she very rarely complains.


  1. Wow what a huge difference. It nearly made me cry to think that Nina would be able to so easily flex her muscles. Does the surgery allow her to flex all her muscles so easily? Do people with CP have pain from the tight muscles as I would from a leg cramp or is it not painful? It looks so painful. Blessings to Nina and the rest of your family!

  2. Within the last year I had a mate get the surgery done. He is doing all sorts of things now.

    Best for Nina.

  3. Wow! That was amazing. Oksana looks more like the "after" video but I'm sure it's because of her surgery. Her hamstrings are very tight though, hence the talk of botox.

  4. Wow! The surgery sounds so scary but the potential outcomes sound nothing short of a miracle!

  5. Oh my goodness. I looked at that link. I can't believe they can do that! Marnie is right, it does sound scary. To me, who knows nothing about how to operate. I'm sure it's not scary to a doctor. And, yes, if it can really help Nina...then wow! Amazing! I didn't realize she was in a lot of pain. I guess it's hard to know if she doesn't say anything?


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