Nichole had her 2 week chekup in Charles City with doctor Schrodt this last Monday. Doctor Schrodt thougt that Nichole still looked jaundiced and decided to do some more blood work. As a mom it was hard since Nichole had been already been poked every other day since we got home to check on her billirubin (I am not sure how to spell it). I thougt, "better safe than sorry." Doctor Schrodt also thought that she seemed bloated, so he wanted to do also a CBC (Complete Blood Cell-Count). Her billi looked great, but the CBC was definitelly not good. Doctor Schrodt had Nichole come back to do a Liver Panel on Tuesday. On Wednesday Doctor Schrodt called and said we needed to do something, "this afternoon, we cannot wait." My heart sank. Doctor Schrodt had contacted Doctor Chandra (Nichole's pediatric cardiologist in Waterloo), and they decided that it was serious enough to act right away.
So we packed up and got ready to come to Mayo, knowing we would be here for a few days. Our dear friends from church came to our house before we left and prayed for us. The Lord surely is sustaining us and encouraging us through our friends and family.
My mom met us at mayo and picked up Ellie. She has had a tough time missing her daddy, but loves being with grandma and her aunties and Opa.
So here we are. Day 2, and we still don't know what Nichole has. Originally they thought it was Billiary Atrasia (?) but today she had an ultrasound and everything looked normal. They continue to take blood to run different tests, but her blood continues to clot. They are not sure if this is related, or the problem. Andy and I are waiting, and praying, but we are not too woried at this point. Maybe because the doctors here have no idea what she has! We know God does, and we know that He will take care of us.
So we are praying that the doctors can figure it out (after all, it is Mayo Clinic), and that we can come home soon. It is a time of waiting. Tomorrow they will do another test in the afternoon, a HIDA (don't know what it is, but it somehow will "color" the tract that her food takes as it travels through the liver and to her intestines).
I will update tomorrow as soon as we know something else.