“I qui oh the way!”
At our first adaptive swim-class, Nichole repeats the line from one
of her favorite Barbie movies, “I am the queen of the waves!”
Her speech is poor and she has a long way to go. But after a couple
of laps around the pool, an older boy approaches us with a loud, “Oh,
oh, oh!” All of a sudden, I feel grateful for Nichole’s speech and the
fact that she can communicate with us. Most likely, she will speak
fluently by the time she is the boy’s age. I feel myself tense as I do
not know how to interact with the boy, so I ask him, “Can you sign and
show me what you are saying?” But he responds with more “oh, oh, oh!”
When we first walked into the adaptive swim-class, I instantly felt
overwhelmed by the different special needs swimming in the water. I held
Nichole close to me and thought, we don’t belong here. My
first instinct was to turn around. I felt scared, taken out of my
comfort zone, yet surprised by my reaction. Don’t I have two children
with special needs? I can do this, I reminded myself, these are my people.
“Oh, oh, oh!” The boy continues. His mother comes over and explains
he is singing us a song. As I swim away with Nichole, the woman begins
to sing along with her son, he is delighted, claps his hands and hugs
his mother. She smiles at him from a deep place so full of love that it
is hard not to feel moved by the interaction. I realize I have much to
learn about disability.
I like Down syndrome. Down syndrome has changed me, it is familiar.
Nichole and I swim in the pool, she is the queen of the waves, and I am a
student, learning what it means to really embrace disabilities. Not
only those that I am familiar with, but all of them. I am learning to
look at the person, not the disability.
I come home and tell my husband, “We have it really easy when it
comes to special needs.” I tell him how I felt, and how much I have to
learn.
For the next class, Nina is signed up for the swim class too and we
have permission to bring our oldest daughter. I prepare the girls
telling them about the big boy that cannot talk. As soon as we enter the
pool, we hear the unmistakable, “Oh, oh, oh!” The girls are not scared
the way I was, they just get in the pool and have fun. When they swim by
him, they wave and say hi.
My children have a greater acceptance of disability and of people
that are different. Sure, Nina has Cerebral Palsy, she knows she is
different, but she is also open to those that have more challenges than
she does, she find something good and positive and praises those
qualities. Nichole is too busy being the queen of the waves, but I
wonder what she will think when she realizes that other people look at
her as different. As for Ellie, her sisters are her sisters, they are
normal. Every individual with a disability we encounter is a person –
and perhaps they have a disability – but it does not matter because
everyone has talents, gifts, and even abilities. My children know what
acceptance really looks like. I will follow their lead and look past the
disability to see the person.
The adaptive swim-class is a place where kids with special needs
learn how to swim. Nonetheless, it is a place where a scared mom
continues to learn how to swim in the world of disability, acceptance,
and unconditional love.
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